«

»

Apr 04

Beyond the Grip of Craniosynostosis by Kase D Johnstun

22238268

 

Title: Beyond the Grip of Craniosynostosis

Author: Kase D Johnstun

Genre: Non Fiction

Publisher: McFarland

Release Date: January 30, 2015

Pages: 244

Format: Paperback

Buy Links: Amazon/Barnes & Noble/Kobo/

Summary:

Both a memoir and a medical study, this unique work explores the extensive and tragic reach of craniosynostosis, the premature fusing of the cranial sutures in infants. The author–born with craniosynostosis in 1975–documents his and his family’s struggles, weaving his story into a broader view of this birth defect. Included are interviews with respected craniofacial surgeons, neurosurgeons and pediatric anesthesiologists, an explanation of the major types of craniosynostosis, and a summary of the modern medical history of cranial sutures, as well as ancient treatments dating to the time of Hippocrates. The experiences of 11 American families affected by craniosynostosis are chronicled, demonstrating the uniqueness of each case and each treatment. Their stories illustrate the surgical techniques now being used to release cranial sutures, allowing the brain to grow naturally–though not every story ends this way.

My Review:

Craniosynostosis is a scary diagnosis for any parent. When you are pregnant you don’t think about possible birth defects. It’s just not something you spend time thinking about. The simple definition of craniosysnstosis is the premature closing of a child’s soft spot. It is so much more than that.

No two cases are the same. Some children have lasting effects, some do not.

This has hit close to home. A close friend’s 10 month old needs surgery soon to correct her craniosynostosis. I’ve seen the roller coaster of emotions that my friend is going through.

I think there needs to be more awareness of this rare birth defect. I happen to know two children that were born with this condition.

This book was written by a man that was born with Craniosysnosis. In this book you learn his back story and what he has done with his life since.

I highly recommend this book for anyone that is affected by this disease in one way or another.

Disclosure of Material Connection: Some of the links in the post above are "affiliate links." This means if you click on the link and purchase the item, I will receive an affiliate commission. Regardless, I only recommend products or services I use personally and believe will add value to my readers. I am disclosing this in accordance with the Federal Trade Commission's 16 CFR, Part 255: "Guides Concerning the Use of Endorsements and Testimonials in Advertising."

About the author

Gina

Hi, I’m Gina and owner of this blog. I'm married with numerous nieces and a nephews. I live in the Pittsburgh PA area. To work with me for a review for you, contact me at: libraryofreviews@gmail.com

Leave a Reply

Your email address will not be published. Required fields are marked *

You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <s> <strike> <strong>

CommentLuv badge